Monday, January 25, 2010

Sprinting in the rain

If anyone was on Longwood Avenue this afternoon and saw a crazy lady sprinting down the road in the rain pushing a stroller with a blanket over it...well, that was me.  Of course just as I was heading out to the pediatrician this morning, it started to rain.  I only parked a block or two away, but it down-poured just as I stepped out of the garage.  Ugh.  Of course.

I haven't had a chance to update.  Busy busy busy busy.  I keep meaning to write, but just as I sit...well, damn I just get so tired.  But I do want to try to remember what is going on before my brain really does turn to sleep-deprived mush.

First, Tzelia:  Still in the hospital.  Her reflux is continuing.  They tried switching her to Prilosec, but were less than impressed with the results.  So they also tried thickening her milk with some rice cereal.  Again, the results were not impressive; she continues to have reflux and spells of brady and apnea.  So today she was scheduled for a swallowing study.  I do not have the results yet, but I hope that they are able to find out what is going on.  Swallowing difficulties (and reflux) are not uncommon in preemies, so this isn't too surprising.  I just hope they are able to figure out a way to make it easier for her to eat.  At least she is not on the NG anymore.

Jason and I still try to make it a point to see her daily.  He went back to work this week, so it is a bit easier for him, simply because he is next door.  Granted he is actually 'working', but it is good that he is just a page away should one of us need to go over there.

Meorah:  still home, and we just got back from her pediatric appointment.  She had not gained weight between the first two appointments, but luckily this time she gained 3 ounces and is now 4 lbs 12 oz.  She had been eating better the last few days, and it obviously showed on the scale.  However, yesterday and today her reflux was pretty bad:  not swallowing, showing a lot of pain while she was eating, and not eating a lot at once.  It was painful to watch.  Her pedi decided to up her Zantac dosage, and hopefully that will help her.  She also has had some blood in her diaper and we found another anal fissure, poor thing.  Pain going in, and pain going out...

Zev:  typical 2 year old.  He is starting to press our boundaries, which is probably a combination of being 2 and adjusting to the new home dynamic.  My favorite example so far:  his play computer is sitting on the floor upside down and he is standing on it.

Sarah:  Zev, you shouldn't stand on your computer or you will break it.  Please put it on the table.
Zev:  No table.
Sarah picks it up and puts it on the table.
Zev takes it off the table, turns it upside down, and stands on it again.


He is funny though.  The other night we were telling him he had to go to bed.  Desperate to do anything BUT go to bed, he yelled 'Stop and Shop!!  Stop and Shop!!'  Guess grocery shopping beats going to bed.

I took him to an indoor playground yesterday, just me and him.  I forget how young he is until I see him around other children.  We had a good time, although I was pretty exhausted.  He found every toy that had a button to push and wanted me to 'fix it' (most of the toys were lacking batteries and were 'broken').  And had to point out all the lights that were 'broken' and 'need new light-bulb'.  Very attentive boy.  And (just to brag), we spent some time on his play computer (step-stool) and I have to admit to being pretty impressed that a 2 year old knows all his letters already...

Jason:  started work this week so he could 'save' a week for when both girls are home.  I'm hoping he isn't so exhausted that it becomes torture....  I feel bad that he has to get up in the middle of the night for the feedings now.  Not that I can sleep in either, but at least I don't have to work yet.  Well, I DO work/do things at home, but it ain't trying to cure people from cancer...

Me:  Still tired.  Ulcer still acting up.  My PCP wants to see me in the next week or two.  I'm on Prilosec twice a day and still have pretty bad periods depending on the day.  I'm having a hard time taking a break (big surprise).  Even when I'm home like today, I feel like there are so many things that need to get done while I have the chance...things around the house, people who need to be called, appointments that need to be made/gone to, babies that require attention...

Speaking of which.....

1 comment:

  1. My youngest daughter had some major stomach issues as a newborn. We did the barium swallow and her issue was with her pyloric valve. It took a few months to get it resolved and then she was the sweetest, chubbiest, healthiest baby around. I know your daughter will be home in your arms soon.